Sharing linked data for health research : toward better decision making / edited by Carolyn Adams, Macquarie University Law School; Judy Allen, University of Western Australia; Felicity Flack, University of Western Australia
(Cambridge bioethics and law)
| データ種別 | 図書 |
|---|---|
| 出版者 | Cambridge, United Kingdom ; New York, NY : Cambridge University Press |
| 出版年 | 2022 |
| 本文言語 | 英語 |
| 大きさ | pages cm |
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| 配架場所 | 巻 次 | 請求記号 | 登録番号 | 状 態 | コメント | ISBN | 刷 年 | 利用注記 | 指定図書 | 予約 |
|---|---|---|---|---|---|---|---|---|---|---|
| 3階専門図書 |
|
W 80-sh-2022 | B1631523 |
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9781108426640 | 2022 |
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書誌詳細を非表示
| 内容注記 | Introduction Research using linked data Individual, collective, and public interests Social licence Human rights Research ethics Law Existing practice and processes Better practice and processes |
|---|---|
| 一般注記 | Content Type: text (rdacontent), Media Type: unmediated (rdamedia), Carrier Type: volume (rdacarrier) Includes bibliographical references and index Summary: "The genesis of this project was the experience of the authors working with researchers, data custodians, ethics committees, and linkage units over the past decade or more managing access to government administrative data for research. Our individual backgrounds, experience, and expertise meant that we brought a diverse, interdisciplinary approach to the table. We started to identify the problems: we heard from researchers that there were concerns with unjustified delay and lack of access to data for research that was in the public interest; we heard from data custodians that they found the decision-making process difficult because they did not have sufficient resources or guidance; we heard from ethics committees that they found data linkage projects complex and difficult to assess; and we heard from consumer representatives that there were concerns about privacy, transparency, community awareness, and consultation"-- Provided by publisher |
| 著者標目 | Adams, Carolyn, 1962- editor Allen, Judy, 1953- editor Flack, Felicity, 1969- editor |
| 件 名 | LCSH:Medical records -- Access control -- English-speaking countries
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LCSH:Data protection -- Law and legislation -- English-speaking countries 全ての件名で検索 LCSH:Medicine -- Research -- Law and legislation -- English-speaking countries 全ての件名で検索 LCSH:Linked data -- Government policy -- English-speaking countries 全ての件名で検索 |
| 分 類 | LCC:K3611.R43 DC:344.03/21 23/eng/20220204 DC23:344.0321 |
| 書誌ID | 2000232768 |
| ISBN | 9781108426640 |
| NCID | BC12672412 |
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